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DeciPHer-ILD: A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD)

DeciPHer-ILD: Tracking real-world PH-ILD patient experiences and outcomes.

Recruiting
18 years and older
All
Phase N/A
**Study Overview:** This study is about observing patients with a type of lung disease called pulmonary hypertension associated with interstitial lung disease (PH-ILD). It's a registry, which means collecting information without giving any new treatment. **Pulmonary hypertension** means high blood pressure in the lungs' blood vessels. **Interstitial lung disease** affects the tissue and space around the air sacs of the lungs. Patients are divided into three groups: 1. Not using a medicine called inhaled treprostinil. 2. Recently started using Tyvaso (a medicine for PH-ILD). 3. Using Tyvaso for over 60 days. **Key Points:** - **Duration**: Participation can last up to 5 years. - **Visits**: Data collection occurs every 6 or 12 months with tests like lung function, blood tests, and questionnaires. - **Eligibility**: Must be 18 or older with specific lung conditions; cannot have certain other types of PH or be using some medications. The study aims to better understand how patients are treated and how well they do over time.
Study details
    Pulmonary Hypertension Due to Lung Diseases and Hypoxia
    Pulmonary Hypertension
    Interstitial Lung Disease

NCT06388421

United Therapeutics

7 March 2026

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