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Peer Support for Adolescents and Emerging Adults With Sickle Cell Pain

Join a study on peer support for young people with sickle cell pain.

Recruiting
16-30 years
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

The study is called PRESENCE and is focused on helping young people with sickle cell disease (SCD) manage their pain better. Sickle cell disease is a condition that affects red blood cells, causing pain and other health problems. Many people with SCD use opioids for pain, but these can have bad side effects. This study will test a different way to help, using digital cognitive behavioral therapy (CBT). CBT is a type of talk therapy that helps change how people think about their pain. The study will also see if having a peer (someone like you) to talk to makes CBT work better.

Participants will be in one of three groups: using digital CBT with a peer, using digital CBT alone, or getting usual care. The study will last for a year with check-ins at 3, 6, and 12 months. You need to be between 16-30 years old, have SCD, and experience pain regularly to join.

  • You will use a phone app for therapy and tracking symptoms.
  • The study will last for 12 months with several check-ins.
  • Access to a smartphone and the internet is needed.
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Study details
    Pain
    Sickle Cell Disease

NCT06374238

University of Pittsburgh

23 August 2025

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