Von Willebrand Disease (VWD) is a condition that makes it hard for blood to clot, leading to more bleeding. This study collects information about bleeding events and treatments in people with VWD. It focuses on the impact of bleeds on life and health. People with VWD types 1, 2, or 3 can join, but mostly Type 1. Up to 200 participants may be involved.
The study lasts about 4 months, with check-ins every two weeks through telemedicine (online doctor visits). There might be an extension for up to 12 months if you want to keep going. You must be 16 or older and have a history of bleeding at least three times a year to join.
- Study lasts about 4 months, with possible extension up to 12 months.
- Every other week, you’ll have online check-ins to track bleeding events.
- You should have had at least 3 bleeding events a year to participate.
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