Recruitment and Engagement in Care to Impact Practice Enhancement (RECIPE) for Sickle Cell Disease is a study aimed at understanding the best ways to assist individuals with Sickle Cell Disease (**SCD**). Sickle Cell Disease is a genetic blood disorder that affects hemoglobin, which is a part of red blood cells. The study seeks to find people who have not been visiting SCD specialists and connect them to necessary care. Participants will complete a survey about their treatments, experiences at clinics and hospitals, pain levels, and their quality of life. They also have the option to participate in a one-hour interview discussing their feelings about their treatment.
Eligibility: Participants must be 18 years or older, have confirmed SCD, and have not seen a specialist in over a year. They must also be able to read and understand English to give their consent.
Key Points:
- Participation involves a survey and possibly a 1-hour interview.
- The study aims to improve care for people with SCD.
- It targets those not receiving regular specialist care.
How understandable was the trial content above?
Hard to understand
Easy to understand