The Pulmonary Hypertension Association Registry (PHAR) is a national research study for people with pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). Pulmonary hypertension is high blood pressure in the lungs, which makes it hard for blood to flow through. The study collects information from people with PAH and CTEPH at specific centers across the U.S. PHAR looks at how these conditions are diagnosed, tested, and treated. It also checks if treatments follow recommended guidelines and identifies any factors that might improve or worsen health outcomes.

Participants need to be seen at PHA-accredited centers and will share information like diagnosis, treatment, and any changes over time. This includes clinical tests, body size, and lifestyle habits like smoking. By tracking these details over time, the study aims to improve care for those with PAH and CTEPH.

• All ages can join the study, and participants need to give written consent.
• The study involves regular updates about treatment changes and hospital visits.
• Participants must have a specific type of pulmonary hypertension to qualify.