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Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort

Join a global study on Huntington's Disease.

Recruiting
18 years and older
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

Enroll-HD is a study about Huntington's Disease (HD), a condition that affects the brain and causes movement problems. The study collects information from people with HD, those who might have the gene for HD, and those without it. More than 30,000 people from 23 countries are part of this study. The study is ongoing, with yearly check-ups, and there is no set end date. The information collected helps researchers understand HD better and find ways to treat it.

Key Points:

  • **Participation:** The study includes people with HD, those with the gene, and those without the gene. You may join if you're 18 or sometimes younger.
  • **Commitment:** Participation involves yearly check-ups and sharing your health data. The study is ongoing without a set end date.
  • **Risks/Compensation:** There are no specific risks mentioned, but participants are not compensated for joining the study.

To learn more about using the data for research, visit Enroll-HD Website.

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Study details
    Huntington's Disease

NCT01574053

CHDI Foundation, Inc.

13 December 2024

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Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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