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Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia

Study on brain bleed risk in hereditary blood vessel disorder.

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**Cerebral Hemorrhage Risk in Hereditary Hemorrhagic Telangiectasia (HHT)** study aims to learn more about how brain blood vessel malformations (called BAVMs) bleed in people with HHT. HHT is a rare condition where blood vessels can form abnormally in different body parts like the brain, nose, and liver. This research is a collaboration with 12 centers in North America to understand these risks better.

Participants with HHT will have tests like MRI scans to find BAVMs. If BAVMs are found, doctors will decide the best treatment. The study will collect health data and blood samples to analyze genetic factors that might affect bleeding risks. This information can help improve care for HHT patients.

  • Participation may require multiple visits to collect health data and samples.
  • Participants must have a confirmed HHT diagnosis and be able to give consent.
  • The study will last up to five years, with a follow-up each year.

Participants will also contribute to a database that helps researchers learn more about HHT and BAVMs, potentially leading to better treatments in the future.

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Study details
    Hereditary Hemorrhagic Telangiectasia

NCT01158807

Unity Health Toronto

13 December 2024

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