Nephrotic Syndrome is a common kidney problem in children where the kidneys leak too much protein into the urine. This can cause swelling and other health issues. Managing this condition can be tough, and families often struggle with keeping up with care. The UrApp is a mobile app designed to help families manage this condition better. In this study, 60 caregivers of children with newly diagnosed nephrotic syndrome will either use the app or continue with usual care. The goal is to see if the app makes self-management easier and improves health outcomes. The study will last for 1 year.
- The study involves 60 caregivers and lasts 1 year.
- Participants will use either the UrApp or continue standard care.
- Feedback will be collected to improve the app.
Eligibility: Caregivers of children (ages 1-17) with new nephrotic syndrome who are sensitive to steroids can participate. Participants need internet access and should be comfortable using technology. If the child has severe kidney issues or other conditions like lupus, they cannot join.