CureDuchenne Link® is a special project for people with certain muscle diseases called DMD (Duchenne Muscular Dystrophy) and BMD (Becker Muscular Dystrophy). It's like a big library of information and samples that can help scientists learn more about these diseases. If you have DMD or BMD, or if you carry these diseases, you can join. Parents or legal guardians can sign up their kids too. You can join through a phone app or a website and will get updates about research and community programs.
Your information is kept safe and shared only with approved scientists. This helps them with research to find better treatments. To join, you must be 4 weeks or older and have a diagnosis confirmed by tests like genetic testing or muscle biopsy.
- Participation is open to anyone over 4 weeks old with a confirmed diagnosis or carrier status of DMD/BMD.
- Information and samples are stored securely and used for research.
- Exclusions: foster children, wards of the state, and prisoners.
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