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The National Amyotrophic Lateral Sclerosis Registry

Join the ALS Registry to help advance research.

Recruiting
18 years and older
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

Amyotrophic Lateral Sclerosis (ALS) is a disease that impacts nerve cells in the brain and spinal cord. This study is a registry, which means it collects information about people with ALS in the United States. The study aims to understand how many people have ALS, what causes it, and who is more likely to get it. It also looks at how ALS might be related to other similar diseases. If you join, you might help scientists learn more about ALS and improve treatments.

  • The study is for U.S. citizens who are 18 years or older.
  • Participants will be informed of opportunities to join clinical trials.
  • No known risks are mentioned for joining this registry.
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Study details
    Amyotrophic Lateral Sclerosis

NCT01772602

Centers for Disease Control and Prevention

12 April 2025

Contact a study center
Step 1 Get in touch with the nearest study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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