**Fabry Disease Registry & Pregnancy Sub-registry**
The **Fabry Disease Registry** is a global project where doctors collect information about patients with Fabry disease. **Fabry disease** is a rare illness caused by a lack of an important enzyme called **αGAL** (alpha-galactosidase), affecting the body’s ability to break down certain fats. The registry is not a treatment program; it simply observes how patients are doing and helps doctors understand the disease better. The registry also checks how well a drug called **Fabrazyme®** works over time.
The **Pregnancy Sub-registry** is a special part of the Fabry Registry for pregnant women with Fabry disease. It keeps track of how pregnancies go and collects information about the mother's health and the baby's growth until they are 3 years old. Doctors decide the care patients receive, and no experimental treatments are involved.
**Key Points:**
- **Time Commitment:** Participation involves regular check-ups and data collection as per your doctor's advice.
- **Compensation:** There is no mention of payment for participating.
- **Eligibility:** You must have Fabry disease or be a pregnant woman with Fabry disease to join.
This registry helps improve our understanding and care of Fabry disease.
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