Biliary Atresia is a liver disease in babies where the bile ducts, which carry bile from the liver to the intestines, are blocked or absent. This study aims to learn more about what causes this disease and why it gets worse. Researchers will collect medical information, genetic material (DNA), and body fluids from participants to study the genes and other factors involved. They will look at how the disease progresses, especially in older children who have not had a liver transplant. This will help understand the disease better and improve care for patients.
- The study involves one visit for those aged 20 and may require multiple visits for younger participants.
- Participants must have a confirmed diagnosis of biliary atresia and be between 6 months and 20 years old.
- Compensation details are not mentioned, but participants need to attend all scheduled visits.
This study is supported by the Childhood Liver Disease Research Network (ChiLDReN), funded by the National Institute of Diabetes & Digestive and Kidney Diseases (NIDDK).