Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry is a project aimed at understanding diseases that cause pain and swelling in children’s joints, known as pediatric-onset rheumatic diseases. The CARRA Registry is a collection of information about kids with these diseases. It helps answer questions about the medicines used to treat them, especially how safe they are. This study isn't testing new treatments but instead watches and collects information over time. Kids in the study are followed for up to 10 years to gather important data.
- Participants need to be under 16 years old for some diseases and under 19 for others.
- The study lasts up to 10 years, with regular data collection.
- It’s an observational study, meaning no new treatments are tested.
If you join, you may help researchers understand the best ways to treat these diseases and make medicines safer for everyone. To be part of the study, you need to agree to share your health information and be willing to be contacted by the study staff. You also can’t be older than 21 when you join.