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ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

Join our study on blood disorders to help advance research!

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Phase N/A

Study Overview: This study, called ATHN Transcends, is investigating blood and bleeding disorders. A disorder is when something in the body doesn't work right. This study focuses on non-neoplastic hematologic (blood) disorders, which means they are not cancer-related. It aims to find out how safe and effective current treatments are for people with these disorders.

Key Details: Participants will be followed for at least 15 years in the study. The study is observational, meaning researchers will watch and collect information without changing participants' treatments. There are different groups, called cohorts, based on specific disorders like hemophilia (a bleeding disorder) or platelet disorders.

  • **Study Length:** Minimum of 15 years.
  • **Participation:** Observational, no change in treatment needed.
  • **Eligibility:** People of any age with certain blood disorders can participate.

Why Participate? Joining this study can help doctors understand these conditions better and improve future treatments. It's a chance to contribute to important research that could benefit you and others with similar health issues in the future.

Study details
    Hematologic Disorder
    Bleeding Disorder
    Connective Tissue Disorder
    Hemophilia
    Thrombosis
    Von Willebrand Diseases
    Thrombophilia
    Rare Bleeding Disorder
    Platelet Disorder
    Factor IX Deficiency
    Factor VIII Deficiency
    Thalassemia
    Sickle Cell Disease

NCT04398628

American Thrombosis and Hemostasis Network

29 March 2025

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Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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