Image

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

Join us to improve care for children with heart conditions.

Recruiting
15 years and younger
All
Phase N/A
  • Simplified description (AI rewritten)
  • Technical description (Original)

This study aims to help infants with a heart condition called **Hypoplastic Left Heart Syndrome (HLHS)**. HLHS is a serious condition where the left side of the heart is not formed properly, making it hard for the heart to pump blood. The study will collect important data on how infants with HLHS are cared for from the time they are diagnosed until they turn one year old. This information will help doctors improve medical care and outcomes. The study will also work with parents to ensure better care and results for these infants. **NPC-QIC** stands for the National Pediatric Cardiology Quality Improvement Collaborative, which is a group working together to make heart care better for kids.

  • The study involves collecting data up to 12 months of age.
  • It focuses on improving care standards in pediatric heart centers.
  • Parents are involved as partners in the study.
Print
Study details
    Hypoplastic Left Heart Syndrome (HLHS)

NCT02852031

Children's Hospital Medical Center, Cincinnati

21 June 2025

Contact a study center
Step 1 Get in touch with the nearest study center
We have submitted the contact information you provided to the research team at {{SITE_NAME}}. A copy of the message has been sent to your email for your records.
Would you like to be notified about other trials? Sign up for Patient Notification Services.
Sign up

Send a message

Enter your contact details to connect with study team

Investigator Avatar

Primary Contact

  Other languages supported:

First name*
Last name*
Email*
Phone number*
Race
Ethnicity
Other language

FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
Add a private note
  • abc Select a piece of text.
  • Add notes visible only to you.
  • Send it to people through a passcode protected link.